the KWH iPad Show #23 💜 healing hope for HPP

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Hello & Welcome
to my 23rd episode of the
KWH iPad Show!

Today’s feature is our road trip to Winnipeg
… in pursuit of a healthier tomorrow 🙂

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And we’re back! … Back home, after our whirlwind road trip to Winnipeg’s Health Sciences Centre—where we finally met Dr. Cheryl Rockman-Greenberg in person and received our first month’s prescription of Asfotase Alfa!!! Dr. Greenberg is the renowned driving force behind clinical trial research for hypophosphatasia (HPP). Over the past decade, other doctors have allowed Husband’s paperwork for obtaining HPP treatment to fall short. But that all changed when we found Dr. Greenburg and Dr. Christopher Lee (our personal physician). We thank God for enabling them and blessing us with their dedicated effort to help make this medical mission trip possible! ❤

As well… I’m back to feeling like my usual self—after suddenly feeling mysteriously “zapped” of all energy for the past 5 days. Weird Dragging myself around and feeding my facebook page was about all the strength I could muster. At least the facebooking was fun… So it’s sure great to be back—in more ways than one!

Here are a few iPad photos of memorable moments and prairie highway scenery from our trip…

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We set out before sunrise in our 2002 Toyota Celica—which still runs bright like its sunshiny paint colour 🙂 After driving 10 hours, we stopped for night at the Yorkton Days Inn in Saskatchewan. During 2 days of medical testing in Winnipeg, we stayed in an east-facing Canad Inns room (see 13th floor sunrise photo), conveniently attached to the hospital. We also got together with family and celebrated one nephew’s 13th birthday! The last time we saw family was last summer’s trip to the Niagara Peninsula. The time before that was our Thanksgiving 2013 road trip… Fun stuff! And finally, an especially yummy thanks to our sisters, for filling our bags with their homemade goodness of cherry jam, spaghetti sauce, salsa and cookies… Plus, one perfectly purple cupcake-shaped handmade soap! 🙂 ❤

Homeward bound, we drove straight through for 14-hours—eager to refrigerate our precious HPP-fighting Asfotase Alfa cargo… Now we’ll wait and see how long it might be before Husband’s daily needle dosage shows signs of healing 🙂

–— 💜 Have you thought about buying a copy of my knitting pattern today? 💜

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Hope continues… ♥ Jackie

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