. . . luv 'n stitches for our tired old world

Archive for October 2, 2015

the KWH iPad Show #23 πŸ’œ healing hope for HPP

Asfotase Alf

frowning Mac computer

Hello & Welcome
to my 23rdΒ episode of the
KWH iPad Show!

Today’s feature isΒ our road trip to Winnipeg
… in pursuitΒ of a healthier tomorrow πŸ™‚


Asfotase Alf

And we’re back! … Back home, after our whirlwind road trip to Winnipeg’s Health Sciences Centreβ€”where we finally met Dr. Cheryl Rockman-Greenberg in person and received our first month’s prescription of Asfotase Alfa!!! Dr. Greenberg is the renowned driving force behind clinical trial research for hypophosphatasia (HPP). Over the past decade, other doctors have allowed Husband’s paperwork for obtaining HPP treatment to fall short. But that all changed when we found Dr. Greenburg and Dr. Christopher Lee (our personal physician). We thank God for enabling them and blessing us with their dedicated effort to help make this medical mission trip possible! ❀

As well… I’m back to feeling like my usual selfβ€”after suddenly feeling mysteriously “zapped” of all energy for the past 5 days. Weird :-/ DraggingΒ myself around and feeding my facebook page was about all the strength I could muster. At least theΒ facebookingΒ was fun… So it’sΒ sure great to be backβ€”in more ways than one!

Here are a few iPad photos of memorable moments and prairie highway scenery from our trip…

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Proverbs 16:9

We set out before sunrise in our 2002 Toyota Celicaβ€”which still runs bright like its sunshiny paint colour πŸ™‚ After driving 10 hours, we stopped for night at the Yorkton Days Inn in Saskatchewan. During 2 days of medical testing in Winnipeg, we stayed in an east-facing Canad Inns room (see 13th floor sunrise photo), conveniently attached to the hospital. We also got together with family and celebrated one nephew’s 13th birthday! The last time we saw family was last summer’s trip to the Niagara Peninsula. The time before that was our Thanksgiving 2013 road trip… Fun stuff! And finally, an especially yummy thanks to our sisters, for filling our bags with their homemade goodness of cherry jam, spaghetti sauce, salsa and cookies… Plus, one perfectly purple cupcake-shaped handmade soap! πŸ™‚ ❀

Homeward bound, we drove straight through for 14-hoursβ€”eager to refrigerate our precious HPP-fighting Asfotase Alfa cargo… Now we’ll wait and see how long it might be before Husband’s daily needle dosage shows signs of healing πŸ™‚

Introducing… my Bramble❀tini Heart knitting pattern

–— πŸ’œ Have you thought about buying a copy of my knitting pattern today? πŸ’œ

β™₯ β™₯ β™₯

Thank you for visiting my Knitting With Heart blog today!
I’d love it if you’d also stop by and β€œlike” my Knitting With Heart facebook page.
Feel free to share links to my posts πŸ™‚ I look forward to hearing from you!

Hope continues… β™₯ Jackie